Journal entry by Barbara Bradley — Nov 12, 2010

Prayers needed. The past couple days have not been good. Wednesday night Katie had 18 seizures. As with contractions, when seizures continue to happen every 5 minutes you better be on your way to the hospital. Billy took her to the ER just after 1am that morning and they drew blood to check her phenobarbital level and gave her an IV of phenobarbital to “load” her system. They got home around 4:30am and she slept much of the afternoon yesterday. Last night I was on-call and she had 11 more. I gave her the diastat twice. I wasn’t even sure that was okay to do but it was that or back to the ER.

I don’t know the answer but I do know we can’t keep going like this. Diastat can’t be the answer every day. As of now, insurance will only let us fill 10 does a month and if we pay out of pocket they would be $350. I guess those insurance morons would rather pay for an ER trip than an emergency medicine. I don’t know how to put a limit on the number of emergencies.

Pray we are able to get a handle on this soon. December seems FOREVER away right now.