Journal entry by Barbara Bradley — Nov 10, 2010

Thankfully I have an update for you. The details have started to come together in the past few days. On Friday, November 5th (Katie’s 3rd birthday), her case was discussed by the Duke epilepsy board and it was agreed by everyone that surgery is her best option. I have been talking with Dr. Mikati and Dr. Grant the neurosurgeon over the past couple days finalize the details.

I got a call from Dr. Grant’s nurse this morning and we have surgery scheduled for December 14th. We can get this over with this year, Nathan will have time off school already, this will be better for us in terms of deductibles, and this could have us home for Christmas. Who doesn’t love a miracle with Christmas as a backdrop? We can literally start her new life as we ring in the new year. 

Now for a reality check. She is having a lot of seizures these days. We have had more nights than I care to think about that she has been given a total of 6 meds (including Diastat) and has still had 10 seizures over the course of the night….exhausting. Needless to say I called the on-call doctor yesterday with this concern because she has now been on the new medicine phenobarbital for a week. Come to find out, the pharmacy didn’t fill the prescription right (most likely due to the chief’s handwriting). Last night we started the correct dose and we already saw fewer seizures last night…. too many still but hope for better days to come.