Journal entry by Barbara Bradley — Oct 13, 2014

Katie has been having episodes over the past couple weeks. Saturday morning, coming off a bad night, she had the screaming episodes while awake. At that point, they decided to admit her for EEG. After a rough day, we finally got a room and hooked up to EEG. Of course, she had 2 episodes prior to them getting the leads on and then nothing after that. Finally this morning she had one. Although she didn’t scream out it was clearly a seizure.

Her neurologist and his team came by this morning. Unfortunately, they are coming from her good side and he is confident this is independent of her left side. She doesn’t react when the left side has activity at all. This is not the best news but at least we aren’t facing surgery.

No sooner did they put her on a new medication…….Can you guess where we are? Unfortunately we are back in the hospital. Although the trileptal seemed to keep the seizures at bay, Katie woke with a rash Wednesday morning. I got word back from the neurology nurse that they had a cancelation yesterday afternoon. If that wasn’t enough of a de-rail to our week, the nurse called me Thursday morning while dropping Nathan off at school telling me not to give the medicine that morning (too late) and to pack a bag because he may want to admit her. Uh…ok…I literally had to back bags, pick Katie up and get a script filled in an hour and a half’s time. This must be how a fugitive feels packing up and getting out of town.