Journal entry by Barbara Bradley — Mar 8, 2015

Katie is still in the hospital and Billy is with her so he would be able to explain in more detail. The neurology team suspect the left side of her brain is not draining as it should. This is causing increased fluid and pressure that is impacting her right hemisphere and causing her latest seizures. A sedated, spinal tap will be scheduled for Monday – Most likely in the afternoon. If things show what they think it will, a shunt surgery will be scheduled. The shunt is put in place that will act as a drain. Of course this is put in very basic terms. I have always been so thankful she didn’t need a shunt yet here we are. But I know it’s better than major brain surgery again. There can certainly be issues with a shunt as I know all too well from other parents. I know just enough to worry myself but I have to stay focused and remain in the moment. I can’t live in “what if”. 

As expected, Katie has had a more difficult day….Billy too. Feeling bad isn’t fun but when you add being tethered to leads and an IV….the fun never ends. I am hoping once they get the spinal tap on the schedule maybe the EEG leads could be taken off but the more information they capture the better.

My focus has been Nathan this weekend. We went to a movie and he chose his dinner destination. Today he already had a birthday party on the calendar so that was a nice distraction. We have also let them talk on the phone. It’s the sweetest conversation to hear. “Hi, Bubby! I yuv you!”

Prayers they get to the bottom of things…quickly. I am ready for us all to be healthy and back under one roof.

On a positive note, Nathan and I both slept like the dead last night. It was awesome.